Jesse's cardiac health started to fail when he was 2 and a half. We noticed he sweated profusely day and night. He was struggling with his mobility both because of his chd, physical disability, lack of diagnosis of cerebral palsy and no early intervention services. He was increasingly blue and breathless. Late one night I could hear him coughing and when I went into him he was very cyanosed so I call an ambulance and he was admitted to two hospitals that night and assessed to be in cogestive heart failure. He was listed for the nextstage of his right ventricle overhaul.
In hindsight I can say that this was the calm before the storm. At the time all hell broke loose. Waiting for open heart surgery is so stressful. Our emotional stay was in anxiety panic mode. Jesse was calm, quiet and blue.