On the day Jesse arrived I noticed that he was not using his right arm and hand. I hadn't been told that he had a problem with this but as I had for many year worked in early intervention I recognised he probably had a right side hemiplegia.
The day he arrived it was very hot over 40 degree Celsius. He arrived along with all his equipment which all needed to be unpack and sterilised. He was 4 months old and in congestive heart failure.
He struggled to feed taking 10 -15 mls at any feed. He would sweat profusely and had extreme difficulty breathing. I was very concerned about his right arm and hand in particular that day. I took him straight to A & E for assessment on the first day. I had been told by his paedatrican that he would need cardiac surgery when he was 4 years old and that for the first year he was at high risk of sudden infant death. So wasn't so concerned at that stage with his heart condition. I had worked with David and felt comfortable with cyonotic conditions.
His right arm and leg I thought might have been a result of abuse or neglect. The A& E doctor was very suspicious of me and thought I had abuse the child even though he had been in my care less than 4 hours. He was discharged with no diagnosis and with me feeling annoyed that I had been considered a child abuser.
It wasn't until he was 3 years and 3 months that a doctor finally recognised that he had cerebral palsy. But nuch had happened in those intervening years.
2 comments:
I can imagine that you were very annoyed!
Lovely to hear from you and about how Jesse is doing :)
I saw your comment on Mother of Shrek's and was wondering if you could give me your email address so I could ask a bit about your son and group homes. Mostly about group homes and thanks in advance.
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